My uncle, who was diagnosed with Amyotrophic Lateral Sclerosis in 2019. This was my first time to learn about rare diseases and my closest experience to death. During the years of his illness, I tried to understand the condition of patients and the current social concern about rare diseases by making occasional visits and reviewing relevant information. I also observed his daily life and understood the emotional connection between the patient and his family.
ALS, the work is divided into two parts: painting and installation. By observing the daily interactions between patients and their families, I depict the relationships between people through the development of their illness as a narrative thread.
Through ALS, core keywords such as social issues, gender, medical technology, biological neurology, and psychology are proposed as starting points for the creation of the work.